 Extreme Fatigue with Mouth Ulcers 70 messages in this subject
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Hi there.
Does anyone else experience what I go through with mouth ulcers? That is, about a day before i get a bout of them (most commonly under/on tounge) I get very tired, run down and generally feel miserable. The pain of the ulcers I can quite often put up with, but it’s the fatigue that seems to accompany them that get’s me down. I have been referred to many different specialists (even now I am under Guy’s Hospital in London seeing specialists) They go through steriod treatments firstly (but these didn’t seem to work) -then a drug called Azathrioprine (which suppresses the immune system - they believe in many cases that this is a link - ie the immune system working too hard?) .. Anyway, I haven’t been taking these as I should do, as they make you feel very sick, but I don’t think they do much good .. As I said earlier, virtually all (well, the most painful) ulcers are on my tounge - either under the tounge/on the side (common place)or on the tip of the tounge... All of which are very painful.. I have found that Bonjella (groan, I know it’s the basic common old thing!)but that seems to numb the pain for the usual 5 minutes - other than this I find Adcortyl in Orabase sometimes helps the inflammation (and sometimes helps the healing speed)Other than this, I have tried virtually anything - I am personally of the opinion that my ulcers might be food related (I have notcied that I cannot touch crips, salad cream for example without getting the usual symptoms a couple of days later. I am now 32 and had these ulcers ever since I was a young child. I have often wondered why there is no more info available as to whats behind them (you would think by now that with medical advances more would be known, eh ?) but there you go... I’ve tried (and still currently use) a toothpaste without SLS (I use a Sensodyne one)..Not that I really think this has any effect, but you never know .. I’d be really interested in hearing from anyone else who knows whats its like to suffer particulary with ulcers on or around the tounge and the miserable tired and drained feelings that accompany them... |
| Paul 5 August 02 |
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| Hi Paul, It is my guess that your ulcers are appearing as a result of being tired and drained. I have been ulcer free for about 2 months, but one week of stress and badly disturbed sleep have seen them return en-mass. |
| Dom Walton 6 August 02 |
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paul.when i get mouth ulcers,usually every month,I feel tired and drained and this in turn then makes me feel very depressed.It’s bad enough coping with a mouth full of ulcers without this as well.YOU ARE NOT ALONE.
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| sara 6 August 02 |
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| It’s nice to know that I’m not alone in this, Sara...(not that I would ever wish this on anyone!).. and Dom - you certainly may have a point about the tiredness/stress side of things - I’ve just recently had a baby (oops - not me personally - that would be stressfull!) - but with all the sleepless nights etc.. I guess this may be taking it’s toll a bit .. |
| 6 August 02 |
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| I am sick of my mouth ulcers, I have been having them for the past two months and tried all kinds of medicine, Western, Chinese and Indian...if someone has a remedy please help me |
| Uma 10 September 02 |
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| Hi! I have Chronic Fatigue Syndrome, Fibromyalgia, migraines, low thyroid hormone level and am tired all the time ~ and have mouth ulcers a lot of the time. If they stuck to the tongue, it wouldn’t be quite so bad, but mine go down my throat as well. Famvir helps. Vitamins A&D (think the vitamin D is the important ingredient) really helps. And getting lots of rest makes them go away. I can always tell that I am ”run down” when I get mouth sores. Have tried zinc lozenges, but they don’t seem to do much for me. Think the cause of these sores is different for everyone. Think that having them biopsied or tests run on the actual sores might disclose some useful information. Try Vitamin A&D ~ sells at Walmart in the US and is very inexpensive. Be sure to get the combination and not just Vitamin A alone. Doesn’t work! Wish I had a permanent solution! |
| Donna 16 October 02 |
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| Hi Paul, I have a similar experience with fatigue when a sore is in ”bloom”. It is not so much the pain from the ulcer itself, but constantly feeling tired that bothers me the most. My ulcers usually appear at the top of my throat, one to two at a time. For the last five months as soon as one heals, another is there to take its place. For me it can’t be stress or the lack or sleep or vitamins. I have taken supplements for years and have reduced stress considerably over the last several months (quit my aggravating job)and I get plenty of rest. I have recently seen a specialist, but he says there is not much that can be done. I have just started taking L-lysine. I wish I had an answer. |
| Rosalind 30 October 02 |
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| Wow someone else who feels the same, Now I’m revealling all..... I have currently got 4 massive ulcers on the bottom gum and here comes the revelation... I haven’t got dressed for 3 days.... I’m so tired, fed up and have no energy what so ever. Yes it’s also the time of the month but I don’t get ulcers every time I have a period although I have had them in the past at this time. I’m 35 and have suffered since I was 10, the older I get the worse the fatigue seems to be when I have an outbreak. I’m sick of doctors telling me it’s stress related or due to a poor diet, as that is totally crap, the diet that is, stress, well..... I’m a busy working mum but that’s life for a lot of women, my stress levels aren’ that high due to work and family, and let’s face it.... i didn’t know what stress was when i was 10!! and I didn’t work and certainly didn’t have kids then!! and as I have already said that’s when they started... Maybe tomorrow I will get dressed and have more energy as the ulcers are coming up the their 5th day of survival and they usually tend to start to heal after 5 days, although they won’t disappear totally until about the 10th day, yeah and that’s if another one doesn’t decide to hatch! I really sypathise with you and wish that I knew a remedy, maybe someone out there does? HELP!!!! |
| Bec 1 November 02 |
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Hi I am writing in on behalf of our teenage Daughter, she seems to either have a cold or sore throat/ear ache...accompanied by ’MOUTHULCERS’.It is reaaly getting her down too, she cannot eat properly and is feeling very tired,for a 16yr old this is worrying us.The Doctor has tried various tablets and checked for Diabetes and Anaemia with negative results!
We are going to try the SLS toothpaste and also a suplement callad Echinacea to boost the immune system.If anyone has any other ideas it would be most welcomed. |
| 3 November 02 |
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A few weeks ago I was suffering with about three ulcers on my tongue caused initally by biting my tongue while chewing (I’m sure many poeple do this and don’t end up with ulcers..but that’s another matter). After soldiering on for three days at work filling up with paracetomol, neurofen plus (useless) and the usual abnesol, throat lozenges etc etc, I arrived at work, burst into tears, went home and slept for about four hours. I was absolutely exhausted. I’m not particluarly stressed at work (bored maybe)although I do rise early every day, so its hard to say if the ulcers are caused by lack of sleep or the energy required to deal with the pain of the ulcers just wears you out. I’m currently suffering another ulcer, again caused by biting my cheek this time, and am feeling really tired.....
By the way, my brother has suffered ulcers all his life. During his adolescence he usually had between 10 and 15 ulcers in his mouth which prevented him from speaking and ended up causing him pretty severe emotional and socialising problems. Anyway, he did have the whole range of food allergy tests at the time and he was found to be allergic to no foods whatsoever. |
| PJ 28 November 02 |
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| yes i get ulcers every 4 months they are a right pain ive got this one in the left hand side of my cheek. its very sore yellow in colour so im usin this mouthwash called difflam and i hope it will go but yes ulcers are very painful indeed. |
| paul miles 2 December 02 |
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| Paul, I also am a sufferer of ulcers. The worst are indeed the ones on the tongue. Do you get a incredibly painful sensation on the tip of your tongue. It seems like many tiny ulcers, but those I cannot always see. I also get the ones on the side and underneath the tongue, so when I speak it is extremely painful. I have taken pain medicine. One throws me for a loop for a while and if I need another one I get violently ill. Hopeless. |
| Fran 6 January 03 |
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| It is amazing how many people have the same problem. I too have been prone to sores all my life. Currently at 29 this year has been the worst! I wonder if taking antibodics has any effect? I was on amoxicillian for two days, then BAM! About twelve appeared on the back of my throat! Needless to say it was quite painful. Those subsided in about a week, and then I was hit again with a mouth full scattered all about the mouth and under the tongue. All the doctors and dentists I have seen state they are ”stress related”. This could be true in my case, but sometimes they appear when I am not stressed at all. Has anyone tried to determine if chocolate is a cause? I do not know if I could cut out chocolate to see if it is a cause. I have cut out chewing gum since I was a teenanger. This seems to have helped prevent some mouth ulcers. probably because it cuts down on mouth trauma. It would be great to learn about others who are suffering with the same trouble and the different remedies we have all tried. Let’s hope for a viable treatment! |
| Cristen 7 January 03 |
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| My boyfriend found this site and I think that it was the smartest thing he has ever done...the best part about it is finding out that other ppl suffer with it and that the feelings of tiredness/headaches/ irritability are not imaginations but real! I usually run on afternoons and play tennis and soccer but when i have these, which range in location from the EMBARRASSING lower lip sores to tongue, cheek, throat etc, I can barely stumble through the bed and just wanna go back to bed. Anyways, warm salt water, bonjela (for 10 secs anyways) help a wee bit...head rubs do too. |
| Kyesha 19 January 03 |
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| Hi Paul, I’m having a huge one right on the side of my mouth. Tried finding cure but none seems to work. Yah I understand the kind of pain you are having. I used to have tongue uclers too until some years back I stopped having them. I realise my ucler has something to do with my sleep pattern. I used to stay up late to study and wake up early the next day and these were the times when I get lotsa mouth and tongue uclers. Also whenever I eat too much crispy / fried stuff like potato chip, biscuit, french fries, i will be prone to uclers too. These food can also worsen my ucler. Now if I sleep early (b4 11pm) and get adequate rest, I seldom get ucler. I hope my case serves as a reference for you and many others. |
| Ashley 19 January 03 |
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Hi!
I am so relieved. I thought I was the only one who had them and felt very ashamed. Now I realize that there are others - lots of them. I had a baby almost 9 months ago, and that’s when they started coming all the time. I don’t get much sleep and stress a lot, so I think I know the reason, I just need to find a way to prevent them. One thing that helps me instantly is a prescription gel from the dentist. It tastes weird, but man oh man it helps. It instantly helps the pain - more than any painkiller ever could. After reading on this website I called my husband and told him to buy some of the toothpaste. I hope it helps....... |
| Marianne 20 January 03 |
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I just started to get these mouth ulcers and definetly identify with alot of these symtems. One thing I would like to mention is a girlfriend of mine was diagnosed with cilliac (not sure if spelling is correct). Your body cannot process gluten (usually found in breads and such)and for some reason some of the symtoms are mouth ulcers. Has to do with possible abdominal surgury. Sorry don’t know anything else.
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| Kim Mac 21 January 03 |
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| If you can stand the initial pain, that feels like nothing else on earth, I think the application of pure salt to the ulcer seems to help clear them up quicker. Perhaps a dab of Bonjela (spelling !!) before the salt may help with this pain. After this the ulcer loses it’s characteristic white/yellow centre for a period of time, though it returns. My own personal feeling, and wholly unfounded, is that these maybe linked to an auto-immune reaction; where the bodies immune system decides to attack itself. Just a thought, though this would also tie in with the Celiac disease comment. As for the stress factor, I’m most certainly not! Though a doctor friend of mine likes to say its subconscious stress. As for tired, I always feel tired (especially this time of year). Though I put this down to being a lazy person and possible dehydration – the single most common cause of daytime fatigue. I’ve never had one on the tongue tough, normally inside the mouth where the lower lip joins the gum. |
| A. Knights 22 January 03 |
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Hi Paul...
I also have fatigue problems associated to my ulcers. To be honest, I’m chronically tired, but worsening fatigue is always associated with the cold symptons that accompany my sores. I am in no doubt my sores are related to a (I suspect)dormant virus in my system, that is triggered by susceptibilities... either lack of sleep, bruising or grazing of the skin in my mouth, stress, anything that might temporarily knock back my immune system. I’ve been doing a lot of studing on this group of viruses and the more I study it the more it all seems to add up. Today I was so tired. I’d gone out to accompany a relative to hospital and had to breastfeed my baby in a loo... and fell asleep on the loo holding her. I had to sit down every ten steps to get my breath back. It was horrendous; everyone was looking at me like I was the patient.
Oh well, hope you’re feeling OK of late. |
| Jenny 27 January 03 |
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| I suffer from fatigue when I have Mouth Ulcers, recently I suffered four in one go. It was the worst time I’ve ever had with Ulcers and I missed two days of College because I was so fatigued. I have been known to wreck family holidays because I have been so tired due to ulcers that I don’t feel like doing anything and have spent whole days in the hotel. I like many on here have also had a cold prior to many of my ulcers. Take Zinc tablets everyday, it has worked for me before. |
| Matthew 28 February 03 |
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| I have mouth ulcers if I am under alot of stress or bite my jaw. When I was younger I used to get more fever blisters, but the older I got the more mouth ulcers. They make you feel like crap. I think warm salty water really helps. It gives you a few moments of relief. To me the pain is not as bad as the fatigue. |
| Ricky 27 March 03 |
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I am 51 & suffered mouth ulcers since I was about 5. I get the ulcers in every part of my mouth,tongue & gums. Since New Year I have had 1 week ulcer free.I am to the stage were I have had enough!!! They are so painful. I have been to many Doctor,s & have tried lots of medications, but I have never found one that works.The ulcers that are in the back of the mouth often cause ear aches & swollen glands,even my teeth ache & eating is a real problem not to mention drinking .I am now looking into my diet,as I often crave salty food before & during my ulcer period .I have been looking for info & also talking to pepole & like Kim Mac Jan 03 I to think it is also somehow related to celiac.
.I am very glad to hear that other people get tied. I am on zinc tablets now.I will try most remidies that people offer, this weeks were rock salt,sea salt & vegemite rubbed into the ulcer........enough to make your toes curl..
I hope we all get relief soon .
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| Lyn 28 March 03 |
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I am 51 & suffered mouth ulcers since I was about 5. I get the ulcers in every part of my mouth,tongue & gums. Since New Year I have had 1 week ulcer free.I am to the stage were I have had enough!!! They are so painful. I have been to many Doctor,s & have tried lots of medications, but I have never found one that works.The ulcers that are in the back of the mouth often cause ear aches & swollen glands,even my teeth ache & eating is a real problem not to mention drinking .I am now looking into my diet,as I often crave salty food before & during my ulcer period .I have been looking for info & also talking to pepole & like Kim Mac Jan 03 I to think it is also somehow related to celiac.
.I am very glad to hear that other people get tied. I am on zinc tablets now.I will try most remidies that people offer, this weeks were rock salt,sea salt & vegemite rubbed into the ulcer........enough to make your toes curl..
I hope we all get relief soon .
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| Lyn 28 March 03 |
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| I’ve had ulcers constantly for the last 2 years. I’ve recently had a (minor) breakthrough in that I have not had a single one for about 2 months. However, this week they’re back with a vengence - 5 of them scattered on cheeks, and the end of my tongue is unmoveable. My glands are swollen and I feel a bit feverish. I’ve been told (by a celiac sufferer) that the ulcers and other symptoms i get - dry patches of skin on my face, scalp and elbows could indicate that I have a food allergy . I’m currently blaming food colourings. But was wondering if anyone else suffers from other symptoms such as dry skin when they get mouth ulcers? |
| Gemma 28 March 03 |
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| Oh yes, and I’ve been wondering why I’ve been feeling so tired. I thought it could be linked but have never had it confirmed until I found this website! |
| Gemma 28 March 03 |
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’Good’ to hear everyone has a similar experience. I’m a psychologist, so I think I’m reasonably aware of when I’m stressed and it doesn’t seem to be associated. I used to get terrible ulcers down the back of my throat that would make me feel almost fluish. I switched toothpaste on reccommendation from a fellow sufferer and colleague to a bicarbonate toothpaste and have never had them since. I’ve also tried to take zinc quite regularly and that may also have had an effect. It’s not all good though as I still get them in my mouth, about a centimetre across, and then, yep, feel completely rundown, glands are up, irritable, tired and ill - I’d much rather have a heavy cold and the pain, as bad as it is, is the lesser of the evils. Not sure what causes what: being run-down leaving me prone, or the infected ulcer causing my neck glands to swell.
I’ve only just found this site - could anyone tell me what SLS free toothpaste is? And Gemma, yes I’ve also got dry skin just now, didn’t realise it could be associated.
My girlfriend has just come in and told me that she read that teatree oil mouthwash and aloe vera gel helps - anyone tried them? |
| Tim 28 March 03 |
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| Since last sunday afternoon my tongue was iritating me a little but it didnt really bother me but on the monday while i was at work my tongue felt like it was on fire and i noticed little blisters on the end of my tongue, as soon as i got home a bought some bonjella but that made it sting and that night while in bed the pain was unreal. The next day i went to the doctors and they didnt have a clue what it was and told me to keep taking nurofen so i did but that did nothing the next day i had to leave work early because of the pain.Some days i dont really feel the burning pain but see the blisters on my tongue ive been out on the town twice and it was’nt too bad until later and i needed to go home early, Eating is a real pain and talking really hurts too im only 22 and ive never had this before so do you think its a one off or will i get this all the time now..My name is Lee by the way. |
| 29 March 03 |
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| Tim, SLS is sodium lauryl sulphate, my mouth ulcers stopped when I started using toothpaste without it. If I eat mints or gum I get ulcers though. |
| Kath 30 March 03 |
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| Hello i wrote a message yesterday sayin that ive had them for a week and ive never had them before so i was wondering if this is a one off or will i get them all the time now. please help. |
| Lee 30 March 03 |
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| Hi Lee... Is there anything that you can think of that may have triggered them (diet or otherwise) - probably a day or two before the first one appeared? |
| Dom Walton 30 March 03 |
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| Hi Dom...Well im not really sure what happened to start them but now after a week of them theyve gone,i dont feel any burning pain on my tongue and i can eat normal like nothing happened so do u think that it was a one off because im just feeling great again.. |
| Lee 1 April 03 |
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| Hello everyone and blimey do I sympathise. I’ve never really been bothered by ulcers (just the odd one and no real pattern) but now I’ve got a mouth full (7/8 from left cheek all along back of mouth/throat)I found this site looking for help and I’m gonna try the salt thing now. Mine were triggered by oral surgey 3 days ago and they are causing more grief than the wisdom tooth!!! Can anyone tell me how long they might last? Thinking of you all (and thanks for a v helpful site dom) |
| Sky 5 April 03 |
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| Hello, mine is much of the same. rarely a day without and at the moment I have 8 ulcers and a split tongue. Specialists all say the same - no real idea. I cant help wodering if anyone hs found links with either herpes or helicobacter?? |
| carol 21 April 03 |
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| A friend of mine sugessted dandelion root. She swears by. It’s probably better if you use the tea form with nothing else mixed in it ... or if you get a tincture, get alcohol free!!!! |
| Ina 25 April 03 |
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| A friend of mine sugessted dandelion root. She swears by. It’s probably better if you use the tea form with nothing else mixed in it ... or if you get a tincture, get alcohol free!!!! |
| Ina 25 April 03 |
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| i was told three years ago i had chrohns disease and that was why i suffered with ulcers but i have been getting them for as long as i can remember i also feel very tired and want to sleep all the time sometimes i have one or two then maybe a mouthful for months at a time. The only time i was completly free of them was when i was on steroids for nine months have tried so many things but nothing else seems to work. |
| Wendy 12 may 12 May 03 |
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| Hi Wendy, My mum has had Chrons Disease for at least 10 years and she suffered bad with ulcers for years, before and after she was diagnosed. Over the years they have gone, she gets 1 every blue moon now. However I now get them all the time, I’ve had upto 20 in my mouth at one time. My uncle also suffered with Ulcerative Colitus and he suffered too but doesnt anymore. Makes you think whether it is hereditary doesnt it!!!! |
| Lauren 16 May 03 |
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| I have been blessed with the little devils along with cold sores for half my life. When I was pregnant with my daughter 20 years ago I developed strept which led to every inch inside and out of my mouth covered with sores. ( I even had to have gum surgery later!) After 10 days in the hospital I left not having a clue what I was in store for. I am a very anxious person so I will say that may contribute, but overall I can go 4 months or sometimes only 4 days without a reoccurance. It usuallys starts with a sore or two on the the roof of my mouth or on the gum line - then BOOM...here comes one of the pretty little sores on my lip. It happens like clockwork. A few years ago they did a complete blood work up and found nothing. I’ve tried everything in the book with no luck. I had severe allergies in the past and even received injections for years (I no longer do) and when it’s the worse allergy season ..fall & spring.. they pop out bad. This time it started with my tongue feeling as if it was burnt, then sores on the gum line. I topped it off with a major blister (actually about three) on the outside of the lower lip, and now a huge one on the back of the throat that keeps growing everyday. The ones on the throat are the worst!! I even felt as if my glands were swollen and I had a fever, but fortunatly I have neither! I do however have a tongue that feels likes it’s burnt still! Today my doctor prescribed Paxil to help with anxiety and stress. They seem to be on overload. Who knows...maybe this is my answer! Thanks for listening! |
| Sue 16 May 03 |
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| I’m Past 60 years old and have suffered for 30 years or more. My best luck has been using ”acidophilus”. Prevents and helps releave symtoms. I get mine from Nutrition express, but any health food store has it. Be sure to get the one that needs to be refrigerated and has a experation date. It seems to work best. |
| Jack B. 31 May 03 |
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| hi, i never really put 2 and 2 together until reading your comments, just thought i was tired because i am aneamic, but i am more tired when i have mouth ulcers (which is nearly all the time) Maybe now my boyfriend will understand why i am tired, and go to bed early. It’s great to know other people feel tired and miserable, and at least we are no longer fighting alone!!!! hope u all feel better soon, will inform u if anything comes up. xxxx |
| lyd 12 June 03 |
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Hello all,
What relief it is to come across this message board!
Ive been suffering from the swines since I was 18, randomly popping up, sometimes having none for months but then being dissapointed when discovering one yet again. This past 3 months has been hell though.... one after the other, after the other...
And the one I have at present (at the back of my throat on my tonsil) has to be the worst yet. It appeared about 2 weeks ago, slowly got worse, I had to go on holiday on the 10th and the pain seemed to erupt on the plain - usually Id be having a laugh, maybe a few drinks trying to jeer everyone up but I was just a misery throughout the flight due to the excentric sharp pain in my throat... maybe its a mind thing, Im not sure, but it certainly affected the rest of my holiday. Obviously I couldnt enjoy the lunch/dinner I had just forked out on, conversation seemed like a drag, and I basically lost all enthusiasm. Well the ulcer just worsened and grew larger as the holiday progressed.... its now a cm in diameter, bloodshot (was bleeding last night) and has a bruise feel to it as well as the usual intense pain. And to top it all off, I suffer from hayfever and get the itchy throat syndrome.
Oh... and theres another ucler forming on my lower gum....arrrrrrgh! |
| Stuart Weybridge 18 June 03 |
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| Truly & honestly L-Lysine (or sometimes called Lypsine) works to get rid of mouth ulcers and cold sores...I take 500mg every day as a preventative measure and when one appears(’coz lets face it we bite our lips and gums and knock them with the tooth brush & that’s when mine mostly appear or lack of sleep and stress...I just had a baby 5 months ago and she didn’t sleep for the first 6 to 8 weeks, so neither did myself or my husband), I up the dosage to 2 tablets in the morning and 2 tablets at night and it quickly dissappears without turning into a massive swollen, throbbing sore mass of flesh...people, try it....it really works. ( a tip: Apparently in the UK it is cheaper to buy it online, otherwise you can buy it at ”Holland and Barret” or something like that, does that place sound familiar to anyone?? In Australia you can get it in any pharmacy. |
| Larissa 20 June 03 |
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| Try rubbing salt on that open wound! I’ve done it myself in desperation and it does help (albeit f***ing painful!) BTW if you have ulcers you should cut down on chillies or any spicy foods. The one thing I notice is that they appear more in winter?! |
| Kev 18 July 03 |
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| I have suffered with mouth ulcers on and off for years, and they are a bloody pestilence, but in the last couple of months I’ve started experiencing them on my tongue as well, which is just excruciatingly miserable and makes you want to become a complete recluse and not do ANYTHING! I’m ”glad” to find out that I’m not the only one to feel completely wiped out and exhausted whenever I suffer from these things, but discouraged that nobody seems to have a definitive answer. Fellow sufferers, I know your pain... the rest of the world have no idea what we have to put up with! |
| Simon 24 July 03 |
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| Has anyone else noticed that ulcers seem to invade new areas of the mouth? You may never get ulcers, for example, on your tongue but once you get one there you know that from then on it’s as likely there as anywhere. |
| Budge 25 July 03 |
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| Yes, Budge, I’ve found that I used to always get ulcers on the top of my tongue and my gums/cheek, but in the last two years they pretty much always appear on my throat (were my tonsils were) and underneath my tongue. God knows why?! |
| Alice (UK) 25 July 03 |
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| Hi, I’m 19 and I get a lot of mouth ulcers and all I want to do when I get them is sleep! I’m constantly tired and got the ”cant be bothered” feeling whenever I have them so your deffinetely not alone! |
| Caz 4 September 03 |
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| Hi this is the first time i have read up on mouth ulcers and i cant believe all the baggage that mouth ulcers come with, i thought stress and lack of sleep caused them not the other way round....im 21 and i have had them constantly for a good few months now-the worst is wen your trying to eat., i really want to get rid of them sometimes i feel like biting the things off cous they r ssooo painfull-yes, the ones on the tongue are terrible! |
| em 8 September 03 |
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| The ones on the tongue are awful! Does anyone else find they subconsiously ’fiddle’ with them though, I know this makes them worse and stops them from healing, but it is a habit now and I don’t know how to break it. They hurt some mornings more than others (mainly when we have had a rubbish nights sleep with our 8 month old!) what a relief to find this site!! How can I break my fiddling habbit then?! |
| Clare 12 September 03 |
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| hi paul, yes fatigue is a big player with the mouth ulcers, also i agree that the ones on and under the tongue are the worse i am currently on iron tablets that do not seem to work, adcortyl in orabase seems to quicken healing and slows down the spread of the ulcers.i have plenty of theories but no solutions. if i eat a lot of sugary stuff, e.g sugar in tea , sweets etc i know i have no chance of getting rid of them, could they have anything to do with dental fillings, i have had ulcers for as long as i have had dental fillings. anyhow many thanks for an enlightning site and a relief to know that we are all in the same boat. |
| roger 19 September 03 |
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| Right before I get a mouth ulcer, I get swollen glands and feel very fatigued. Plus, the pain is very exhausting in itself. I could sleep all day! |
| monique 27 September 03 |
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| Hello all - I am a 42 yr old male - I’ve occasionally suffered from a few small ”cold sores” on the inside of my lips but now I’ve got this HUGE sore on the side of my tongue. Every time I eat or speak it rubs against the ridge of my back teeth and cause EXTREME pain. This is the first one of this size or pain. I can’t even imagine how most of the posters here cope with multiple / reaccuring sores! I can barely speak sometimes. This is day three and I hope the d*mn thing goes away soon. I read another poster here that questioned the link between mouth sores and herpes. I think there might be a link. Anyone else? Thanks all! |
| Brian 27 September 03 |
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| Hi all,I suffer with Ulcers for 2 weeks of every month.I’m always tired but try to eat sensibly. I suffer with interupted sleep so am going to try nytols to see if this helps. I also have a slightly over shot top jaw and think that my teeth rubbing on my bottom lip at night is probably part of the problem. I think I might start sleeping with a dummy in my mouth and see if this also helps.I’m not mad! just desperate.I find that adcortly in orabase helps speed up heeling,best to put it on when you go to bed.Haze 25. |
| 28 September 03 |
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| Reading all your post,I can almost relive feeling the pain..the one post mentioned when she gets her period it could be a iron deficency? Just a guess b/c the same thing happens to me..but I get them also when I don’t have my period..I also noticed when I eat anything with acid like pickels,relish,pineapple I will break out in quantity..I think it is a an immune system problem |
| Gail 28 September 03 |
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| You are right the ones on the tongue are the most painfull. I have had one the size of a penny on my tongue for 3 days now, and I just want to cry. I have also found that headaches normally accompany ulcers, is that probably something to do with holding your mouth funny do you think? I know all I want to do is go to bed for 2 days and not get up until it is gone. |
| michelle 4 December 03 |
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| I had just finishing posting to another topic then I read this one. I have one right now on side of my tongue that is killing me, Ive had swollen glands and tiredness for about a week now, then the blister showed up yesterday. I never associated these symptoms, but now thinking back, its making me wonder. Im definately feeling run down. Im so glad to find this forum, I have always suffered through this alone, ( i think I did put salt on one; one time, almost killed me)I just didnt know so many ppl had this. |
| laurie (US) 8 December 03 |
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| I can’t believe so many people have the same symptoms as me. I go through bouts of feeling very achy (like when you have a bad cold), tired and never realy thought it could be linked to my mouth ulcers. The other day i phoned in sick because i just couldn’t get out of bed, i slept for 13 hours solid and was still feeling bad the next day. I get alot of ulcers on the tip of my tongue, side of tongue, cheeks and i currently have the biggest ulcer i’ve ever had on the back of my throught. This all seemed to start about 2 years ago when i caught this god awful virus, i’ve never been in so much pain, my whole body ached to extreme. Ever since then every so often it seems to hit me again causing the ulcers and aches. I caught genital herpes about 8 years ago and get occasional outbreaks, does anyone know if this could be a possible cause? |
| Jon (uk) 10 December 03 |
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| I have exact same symptoms of fatigue every time I get mouth ulcers...there is some connection with fatigue because I find everytime I have ulcer I am tired. |
| doug 16 December 03 |
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| Wow at last others that suffer like me. I’ve been suffering these damn things for the at least 5 years. I’m currently sporting at least 15 and yes I feel so tired. I always seem to enjoy a large influx of killer ones straight after a night out with a bit too much drink. Not good news with so many nights out planned over xmas....anyone have any simple help to survive xmas and actually taste the xmas dinner ? |
| Martin 17 December 03 |
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| Like all the above sufferers I just want to die when I get a new set of ulcers, the sides and top of the tounge, cheeks and lips all suffer at times and I am not free of them for morethan 2 weeks out of every month. Tried everything I can think of, the only thing I found was whilst living in america for the last 10 years was a product called Kanka made by Blistex which coats the ulcers with a film and stops the pain, this is the only way i can get through the night. Since returning to the UK I have to thank my American friends for my care packages. Yes I wish there was a cure as it has a huge impact on my life just as many of you express in your comments. |
| Colin 18 December 03 |
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| i have been getting painful ulcers on the inside bottom lip as sara said, you’re not alone - nice thing to say too |
| George 19 December 03 |
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| i would say the best cure is to remove all stress from your life - and don’t give up on this - i have been very stressed for the past 4 years. So be brave - find out what’s causing your stress and kill it. I personally felt a wonderful holy feeling when i was prayed for by Christians four years ago which have got me very interested in Chrsitianity - and yes you might notice that it seems that i’ve been suffering bad stress for the same amount of time that i’ve been Christian - well it may have been longer than that that i’ve been very stressed for - it was, and i had no responsibilites back then plus i had ways of dealing with it which i’ve stopped now - smoking, drink, drugs, to name some, all of which i’ve now given up. That feeling of The Holy Spirit was complete peace when I felt it and i’m longing for nothing esle ever since. I felt it more than once - probably less than twenty times - my heart goes out to you all - come to Jesus - He said ” Come to Me, all you who labour and are heavy laden, and you will find rest for your souls”. There’s hope for us all. God bless you all. I love you all and so does God, hence why He sent us His only begotten Son, the whosoever believes on Him shall not perish but have everlasting life. He helsa many people today, of cancer and ”incurable” diseases. His mercy extends to you all. H ehas born all our disease on the cross, not to mention our sins, whcih He died to save us from, and all who are baptised into Jesus now have their sins washed away. I’m not sayinfg being a Christian is easy but it sure beats everything else I’ve tried by miles, and in the end, we have peace with God and will inherit eternal life after all our trials on this earth. God bless you all. God bless you all. George |
| George 19 December 03 |
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| Wow, what a powerful message. We have all added our two cents on medicines, causes, cures, whatever.....but I truley believe that you have summed it up with your awesome contribution. Thank you, thank you! And the greatest thing is, I was so wrapped up and feeling sorry for myself, boo hooing about having to finish my shopping in this lousy weather, and carrying on because I have family coming over for Christmas that I forgot the reason for the season. Again....thank you! |
| Tracy 19 December 03 |
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Yes I understand, try using a herbal toothpaste instead of the stuff they place on the market. I have had 4 months of canker sores and ulcers, then 10 days ago oral surgery to remove a mass. (No cancer thank God) I do not smoke or drink. My only change last year was my toothpaste. I now use a herbal one that does not contain any SLS.
Hopefully I wont get anymore. Make sure you see the doc as thet can turn to Cancer |
| Gaye 8 April 09 |
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| When I get ulcers I feel completely drained and tired. The attack does something to the body and makes it feel tired. It's NOT the other way round as someone said....ie. you get tired so get ulcers. It's the ulcers that directly cause tiredness PERIOD! |
| ulcerRULESme 29 May 09 |
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I am so glad that I have read this site. I have been getting intermittent mouth ulcers since a kid, but now at 32yrs old I have had them constantly for the last 6 months, and feel so tired! Everyone has commented how tired I look all the time, and I have been wondering what is going on. I have been checked for coeliac disease, and had bloods done - so far all normal. Just wondering to keep on going on the investigation path, but by the sounds of all the postings here that there is not much hope of finding a cause! At least now i know probably why I feel so tired at the moment!
Thanks for this site! |
| Trace 26 February 10 |
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I suffer terrible fatigue with ulcers, the best method is to beat them back by randomly changing mouthwashes and toothpaste, keep your teeth impeccably cleaned and rotate products every 3 days as they get immune very quickly to what you are using.
the worst attacks are always when you get rid of a cold, I am sure your immune system runs out of targets and attacks the good bugs in your mouth, making way for these nasty little devils to take opportunity
dab the the little blighter's with a cotton bud and fluoride toothpaste to shorten their lifespan by half.
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| Mark R 1 March 10 |
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| I suffer from Anxiety & my doctor prescribed me Effexor.I have recently have had canker sores & my doctor tells me it is heriditary & stress related.I do worry about everything and sometimes will bite the bottom of my lip when i feel stressed,causing a canker sore to appear the next day.I bought a mouth rinse at Walmart called Oral 3 Amosan & Oragel for cankers.This really helps!I am now going to try that SLS free toothpaste.I am so happy I found this site.Reading things on the Web can scare you into thinking you have Cancer,ect.Thanks Guys! |
| Natalie S. 7 March 10 |
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| I also keep getting re-occuring mouth ulcers they are so sore and I fell so tired all of the timw even when i get a night sleep, I have an un-deractive thyorid so this does not hep either, its good to here that I am not alone on this, it seems by reading some of the above that stress is a big factor in the ulcers and when you get the ulcers it makes you feel even more tired than what you where before - mouth ulcers can really get you down |
| Phil M 08 July 2010 3 July 10 |
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| Extreme fatigue, yeah, I know it well, I first mentioned it aged 12!.. and wasn't taken seriously, just like with the ulcers, kidney infections and headaches. For the red face I get told to cut down on my drinking (I drink one and a half pints of beer and one scotch a night, it helps me relax and sleep. I don't like to drink more than this it makes me feel rough the next day. Is this excessive?). Purely by chance the other day I looked up Lupus for someone's mum, and suddenly it all falls into place - doesn't help though. Doesn't help one bit. |
| Tired Depressed Jedd 13 July 10 |
